RL Struggles, Strife, and Sadnesses
Heya all!
I came to the forum wanting to make a post about a big old personnal sad that I wanted to share, and I didn't really feel like it was something that warranted it's own thread; in the past the "Mad 2: Madden's Maddening" thread is where stuff like this has historically been put, but the title makes it feel a bit strange of a placement for a lot of the posts that end up there. So I thought I'd make us a new thread for this kind of post.
For those who don't know, when someone reacts with "awesome" to a post, it shows up as a heart - and that feels like a very appropriate reaction for the idea behind the kinds of posts this thread is intended for. As such, I suggest that we consider that a known thread policy: Awesome = Heart.
I hope this thread can serve our community as a place to lean on each other and share in the low points of our lives, knowing we're surrounded by people who care.
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As many of ya'll know, @Mephistoles and I have been expecting our first child. We've been pretty excited about it! I have brother with a congenital heart defect (TGA for those curious), so I was denoted "high risk" and therefore set up for a super-in-depth ultrasound this Monday at 22 weeks.
At the ultrasound we found out that our little guy had fluid around the heart, only evidence of one kidney - which was notably enlarged and riddled with cysts and that he had little-to-no amniotic fluid. They didn't know for sure how long he had been without the amniotic fluid, but it's vital for fetal lung development, and at 22 weeks, that's past the critical stage for lung development and the evidence suggested he had been dealing with this for some time.
So, all in all: he wasn't gonna make it.
(spoilered here for potential TMI)
So this morning, we had to say goodbye to our little guy.
If nothing else in all this, I want to throw a huge out there to everyone who's been supportive and comforting in the mean time. And also a gigantic to @Mephistoles for being the best husband I could hope for through all this.
Someone who was so small that properly he was barely even a "someone". There wasn't a chance for anything; not a first breath, or laugh, or cry, or to even hold him for a second. He was gone before he even got a chance to be a person and all those hopeful moments of what I could do for him are bitter. I kept worrying so much about how to be a good Dad but now that's just not in the cards, at least not for him.
I love you @Zaila, and as much as this is wretched it's tremendously less so that you're the one I'm sharing it with.
That's all I wanted to say, carry on. Maybe I'll share something later. But I'm NOT afraid to admit that Mephistole's followup post made me tear up a bit. You two are strong as heck. Hope you know that!
I know for a lot of you have experienced your own tragedies and I want you, as people, to be free to share them. We shared first but this isn't "about us" and we don't want it to be.
So anyone, feel free to share whatever you feel. Our pain in no way diminishes your own. In other words, see @Zaila's great opening post.
As for my own woes and something I haven't really addressed yet:
I'm only writing about it now because it's an issue I have been involved with and have to continually be involved with, some times daily. I've been fighting near-constantly to keep her alive and happy the best I can, but it's beginning to feel like a losing battle - and one I'm growing too numb to fight in anymore. Since I'm more or less the only family she has left, that makes me feel like a terrible son. It's been over two years now of trying to hang on and things are just getting worse. The constant doctor visits who all warn her about the cigarettes, having to deal with her caseworkers and the crappy, depressing place she's stuck in, combined with the fact that she still tries to smoke a pack a day is just starting to be too much.
I'm not here to nag or judge, but please, if you love your family and friends, take care of yourself and stay healthy the best you can.
I was called all sorts of names and wanted to off myself. Everyone knew me as that girl who did x and is a total x. People I thought were my friends were too ashamed to associate with me, but would lead me around with encouraging texts of support only to ghost me at class. I think this pandemic and isolation really helped me out though. It gave me time to mellow out, and if I'm ever met with that ridicule I'm sure I can just brush it off and tell them to fuck off.
School is wild.
@Savas Good job continuing to be there, that takes more strength and effort than a lot of people know. My grandmother developed breast cancer that ended up spreading to her skull, resulting in whole-brain radiation. She was living with my great grandmother, but the radiation diminished a lot for her, she started falling, and she was a little too much to handle for my great grandmother that's starting to feel the sting of old age too. Grandma declined really quick and was brought into a nursing home for physical therapy as she was wheelchair-bound and delirious. Nursing home said there was nothing else they could do for her, and that they imagined she had a few months left.
I couldn't stand seeing her in the nursing home, so I moved her in with me, 3 months after buying my very first house. I joke that I had 3 months to actually enjoy having my bachelor pad before grandma crashed it. After about 6 months living with me and a whole lot of work and care, she was up and walking, and mostly self-sufficient, but not enough to be living on her own or returning to work. She'd still need me as her caretaker, but not quite as extensively as she did in the nursing home.
Fast-forward to hitting the 3 year mark two months ago of grandma living with me and me being her caretaker. Cancer, as stage 4 metastatic cancer tends to do, has spread, and I've been watching a mental decline for the past year. She'd started hallucinating the other week, which lead us to more testing and MRIs, which is looking a lot like cancer spreading to her brain. I take her to at least two appointments a week for oncologists and chemo, neurologists, and a so many other -ologists that they start to blend together. I've been managing the whole thing for her as best I can, and it seems like we're starting to slip into that losing battle phase. Family for her is there in the sense that they get updates when I tell them, including my mom, but I think there's been a case of out of sight out of mind happening since she started to decline.
As she gets worse they seem to distance more, because they don't like seeing her like that, but I don't get that option. I feel like I've got a front-row ticket to watching this woman I've been taking care of for 3 years now during some of the allegedly "prime" years of my 20s start to crumble. I've completely changed my life around to put in the work for her to get better, and she did for a while, but right now the decline is inevitable no matter how hard I work or what I do. It feels helpless, and isolating too when family seems to show no interest. I'm lucky to have an amazing fiance that helps and is a post to lean on when I need propped up, but the helplessness is awful. I know realistically she's outlived her life expectancy by a few years, and I can't expect to keep her with us forever, but damn if it isn't a struggle each day seeing firsthand new signs of deterioration and decline while most people that care about her would have no idea.
Phew. Sorry for the novel, but it felt good to let that just float out there somewhere.
First of all, you are awesome. Amazing. It is not an easy thing to stand by someone who is in a state of physical or mental decline, so to manage that makes you incredibly strong.
Second, don't forget yourselves. Make sure you ask for help when you need it, even if it is to replenish your energy. Taking a small break does not make you a horrible person. It makes you human.
The industry of this variety of entertainment exists as an industry because of -many- guidelines and laws that govern it.
At the end of the day, your body is your property, and only you have the express rights to it, and the choices it makes.
You can press charges, amature recordings are governed by the same, and what was done is illegal.
SEGUE:
I am really proud of this community for being a collection of diverse humans, and having a trust and willingness to share.
You all bring forth the best out of some of the worst situations, and in reviewing alot of this, it provides me insight and understanding to many of your lives. I too have struggled with many things, primarily who knew me when I played Aarbrok was addiction and alcoholism, then again taking a bunch of pills/uppers, chainsmoking, drinking was how I existed back then....in my twenties.
Now in my nearing the forties....I am paying back for alot of my bad decisions in the past, but I am making it through it one obstacle at a time. I am grateful for many of you, despite alot of our disagreements, or clashing of idealism and beliefs we may have had...at the end of the day you have all seen me as a human in my best and worst form. (Honestly...you guys have)
Now being clean for 7 years, experiencing a healthy lifestyle, striving to get through insecurity and anxiety.
I am grateful for you, despite the pains and anxieties that persist....we are in it together.
All your stories above show that we are human, we have faults, we have experienced pain....but we do it together.
So I suppose amidst all these trials we face together, let us be glad we have one another.
Sounds like you were friends with a lot of shitty people, so that doesn't help.
(Illuminai): Saltz says, "Moxie is just doing the Moxie thing to do, often misinterpreted."
(Tells): Sir Iames Gallant, the Executioner tells you, "The one Illuminai beyond prayer, I swear."
Valingar: "How could a daughter of me, the most noble man in the south, be so heartless?"
(Tells): Haven Locke, Illuminai Khimaira tells you, "Be that as it may, I've also seen the strength in you. You can take care of yourself."
After my dad passed suddenly back in 2012, I moved my stepmom down to be closer to us. She was only in her 60s, but disabled due to back injuries and bad health choices. This made her depressed in the senior center she was in, and I ended up moving her into our house. She was the last 'parent' I had, so I wanted to try to make her life better. And she wasn't fully disabled, so she was able to get around with a walker and settle her own food.
But, there were always ups and downs. She would fall because she wouldn't properly take care of herself, and it was hard for us to get her back up. She was hospitalized several times, some more dire than others. Eventually, she started to hide how bad off she was, until it was too late and she went in for her final hospitalization. She tried to eat chicken that was too big for her to manage and it got lodged in her throat. That didn't fully get her, but the aspiration afterwards did. She passed only a few years ago now, but I still feel haunted by it every day when I see someone elderly or I hear elderly stories like some of the ones here. I could have been nicer, more helpful, more observant - and regret not spending more time with her.
She was there when Joe and I got pregnant with our first son, Oliver. At 20 weeks, my waters broke. He wasn't developed enough, even with injections, to survive and I already had an infection that would make things even more difficult. So, we made the tough decision to induce further to end the pregnancy. 2014, we mourned with family and planted a tree in the yard in memory of him. But, it took a long time to get over. And if I ever go look at the photos of him, it just brings it all back in again. But, we have Oswin who was born in 2015 and he's fantastic. We probably should have waited, if I'm honest about it, to not make ourselves feel like we were pushing into having another child - but it ended up working out. Do better than us and just take your time with that decision if you decide to make it.
Now, after the loss of my step-mom, my husband's parents slowly started to deteriorate. So within the last few years, he lost his mother and then later on his father. I think the watching of them slowly going downhill is much more difficult to handle than something sudden, but neither are good. With both you have regrets, frustrations, and pain - none less important than the other. As long as you can have some sort of support around you, it does make the blows get better eventually. Not immediately, but eventually.
Then, last year, we almost lost me. I had a DVT/PT really bad. Lots and in both sides of my lungs, remaining clots in my legs. All of this was because I was pregnant, in my late 30s, and went on a long flight that didn't allow for much movement. I thought I just had low oxygen when I went into the hospital for it, but found out how dire the situation was within a short time frame. I was hospitalized for a good while, getting myself prepared for twice daily shots at home. But while I was there, my 11 week pregnancy was advised to be putting additional risk on my life. It was either I carry on, doing shots, and still risk the chance that we could lose the child -and- me later on. Or, we save me now and terminate the pregnancy. Joe and I made the tough call to end it, just to be sure I'd be around for him and Oswin. We were advised, so long as I am obese and considering my age, we should not try for children again.
Since then, I've done everything I can to try to improve my health. As of 3/10 of last month, I had gastric sleeve surgery, to help with this. And, I'm on the right track to lose weight and at least not risk as serious of health complications again. I don't know if, once I lose the weight, we'll have the strength to try for another child or not. But, at least I am feeling better and able to actually spend time with my family again. I started out at 281, down to 241-ish. Yes, it's a permanent tool, but it is a tool. I haven't felt this great since I was in my 20s.
Anyways. With all that said, I know I don't get along with everyone perfectly - no one does - but I'm always willing to be a shoulder for someone going through a rough time. Every single one of you are important, and you should never have to go through pain/difficult times alone. If you need someone, just reach out.
I'm goin' through it. But I love writing intuitively so I RP.
I'm also on the Autism Spectrum and I feel like my writing often reflects how that manifests and my reflex is to apologize for that but I also know that I shouldn't, so I will just acknowledge that I can be difficult to interact with and say thank you for those that are generous with their time and patience. I really do appreciate it. Y'all really add good stuff to my life.
In any event, it sucks that you're going through that and I can certainly empathize with you as one of my jobs was like that. I lasted three months before leaving on my own.
My rant: I'm just -tired- all the time. This is still that time of year where my seasonal affective disorder is in the extreme and I exist in a perpetual state of lethargy regardless of how much sleep I do or don't get. My body wants to sleep for 14+ hours if allowed, so I have to compel it to get out of bed, which alone is enough to screw up my circadian rhythm.
Lastly, I feel listless. I went to bed last night thinking that I was an awful person, which is often just depression talking when you're isolated and trying to go to bed -- but I feel like I've been in cruise control these last few years and I'm not sure what to do, or what I want out of life. There's tremendous pressure from my family to get married and have kids, but I'm not sure if either of those is for me. There's that fear of being alone for the rest of my life t hat terrifies me, but I enjoy my privacy and independence. I'm definitely leaning towards "no kids" though, I just don't see the viability of it in my future and I'm more against it the more guilt-tripped I get by my family on the subject. They want me to have kids so they can have the enjoyment of having children but then hand them back to me when it's responsibility time and I'm not about that life, nor the amount of money that goes into raising a child. I also just don't think I have any sort of paternal instinct aside from my pets.
So yeah, my rants for today.
So, I am not sure how many actually know much about me, but this last year was met with lots of major health related events for me.
In Feburary 2020 I had a radical hysterectomy due to cervical cancer that was spreading, ended up in my uterus and my doctor insisted I have it done. Thankfully I was allowed to keep my ovaries for now.
But, with autoimmune patients, its whack-a-mole. We whacked one issue, only for a bunch more to spring up.
I was recently diagnosed official with Lupus Anticoagulants, which puts me at a very high risk of throwing blood clots to vital organs, or stroking at the young age of 31.
On top of this, I was diagnosed with P.O.T.S. which is just a fancy way to say I pass out if I sit up/stand up too quickly, or for too long.
My heart also doesn't adequately pump due to extremely weak blood pressure think 90/60 (which is normal for me) and I am not sure if many know that when bp's get within 25 of each other its a sign of congestive heart failure, and I am bordering on that, with very little my cardiologists can do.
So, with Covid-19, I have developed severe anxiety about catching it, which has left me a mess, which I know has come off in Oriana's actions in the game. So, I want to apologize here, if Oriana has been short/cruel with you. I have been overwhelmed, and because of fears of the 'real world' it is one of my only outlets for human interaction.
So, thanks for dealing with Oriana/Me during this, and I am hoping things soon level off and get better.
-Darla
Sometime between my last clinic and the one today, the county opened up registration for vaccines to include people 65 and over as well as people with high-risk medical conditions, which is estimated to be around 40% of our entire adult population. We already know that people will be on waiting lists for weeks, but we're in the same position as almost every other place - there just aren't enough vaccine doses yet.
So today I was doing the "greeter" position, which included verifying that everyone going into the area had gotten a text saying that they could come inside for their appointment. (Or figuring out why they hadn't gotten the text, helping with translators, etc.) Part way through, an older man came up and said that he didn't have an appointment, but that he'd been through the registration, put on the wait list, and was just trying to see if there was any way we could fit him in because he was 71 and had high-risk conditions. I had to sit and watch for close to an hour while my supervisor, and then hers, and then two people from the registration phone line, all talked to him to see if he had any other options. It was really obvious from watching and listening that he was just desperate because he knew how dangerous it would be for him to get sick, but there was literally nothing else I could do.
I know this is far from an isolated case, but something about seeing and really feeling that sense of helplessness over the whole situation really hit me hard. I hope things end up working out for him somehow.
An edit here after a glass of wine: What happened might literally have been something that was a life or death thing for another human being, and I really couldn't do anything about it. I, and the people I've been working with, are all just doing the best we can with what we have, and we know it's not enough for everyone. Unicorns Covid.
When I moved back across country, I moved in with the parents until I could get back on my feet and get my own place. It has seemed like I was just needed to be here. At the end of the year, they found a brain tumor in my mother. She has native health care, and they just flat out denied even sending her to a neurologist, citing potential cost as the reason for denial. It has now been like 3-4 months of her appealing it and they have not even answered. It seriously affects her way of life, and I eventually worked out some CBD products that allow her to be mostly functional. On top of that, a couple of weeks ago a pet gate fell on her foot, and cause an internal infection. My former mother in law, has her own medical issues and has to have surgery to potentially avoid ovarian cancer. My grandmother has had stage 4 lung cancer for over a year, and we can hardly even visit due to COVID or potentially exposing her to -any- sickness.
On top of all this, my work, which I loved quite a bit, decided that I had missed too much work due to children or taking care of my mother, and fired me. I had been expecting it, because my supervisor kept railing at me about how I needed to fix shit and make better priorities. Finding a job that works with scheduling and not forcing me to pay massive amounts for childcare is super difficult, and I am stressed about that working out. I at least have Door Dash and other delivery things I can do to make some money in the mean time, but its not a steady, regular amount of pay.
I am staying positive, but I am already on board the fuck 2021 train.
Just to give you an idea of how stressed my current situation has made me, here is an example: Yesterday I basically forgot how to properly end a lesson. As any person should be able to tell this simply means that you recap the lesson's contents, remind students of next lesson's contents, ask if there are questions, and thank them for the day. I stared blankly ahead for a good while before thinking "screw it", and then essentially told my students, "You can leave now. Thanks!"
I find myself having to read my daily planner repeatedly throughout the day, just to remember where I am heading next. This is from normally having my schedule, students' names, last week's activities, this week's plan, all room numbers and times for all my classes in my head. Post-it notes are my new best friend, and thank goodness I started off color-coding all my stuff last semester so I know what papers belongs to what class.
So far doctors have found no reason for my being out of breath at times and exhaustion, memory issues, and severe lack of the ability to focus(despite MRI, heart examination, bloodtests and more), and mostly say they think it has something to do with me having had Covid-19.
Thankfully I have the best workplace ever, with wonderful bosses and coworkers. My principal told me today that I'm likely not of a mind to make competent decision about my own capacity at the moment, because I really want to help and work and not want to be a burden, so he ordered me to skip two classes tomorrow and Friday, just to make sure I can keep it together and not burn out. No pay cut, no consequences. Only an order to not feel guilty about it.
I log in to check messages and shake my idols, send a couple placeholder tells and do mini solo rps for escapism and then log out. I miss you all and look forward to our epic rp sessions when I am in a stable-ish place again.
I don't know what to do.
I don't understand the emotions it's causing in me. I don't understand how to think anymore. I don't know how I'm supposed to act like everything is normal after this. I know deep down my body will reach its natural capacity for grief and essentially flush the system, but right now I'm like the crab in the bucket. I can't see outside of this feeling at all.
I don't know how I'm supposed to sleep tonight.
I don't even know why I'm posting this here, except that the alternative is to somehow hijack a news stream and tell the entire world.